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Joined 8 months ago
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Cake day: August 20th, 2024

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  • So, any advice on how to get these guys to actually listen? Not sure if this is just an American thing, but I’ve had some bad luck with ERs:

    I’ve been kicked of the ER after suddenly losing all feeling in my arm (which thankfully came back a day later).

    Another time, I had sudden weakness that was bad enough that I lost the ability to stand while in the waiting room. They checked my basic vitals, saw normal numbers, and rolled me out of the place at 3 AM in a wheelchair after accusing me of making up my symptoms.

    When I went to the urgent care for this circulation issue (because the tip of my toe was literally turning black) the doctor told me that it wasn’t urgent and set me up with this vascular specialist. He said casually that it might be some kind of heart problem, but I’d probably be fine because I’m young. That was 3 months ago. The circulation in my hands has diminished during that medium-term time frame, which is the worst time scale for degenerative changes to occur, because it’s not urgent enough for most doctors to consider it an emergency, but not long-term enough for regular appointments to catch it in time.

    I appreciate the suggestion to seek emergency care, I really do, but I’ve been burned so many times while losing thousands of dollars in the process that it’s not so clear cut to risk going for a medium-term issue. I don’t have much in savings left, and my parents have made it clear that they won’t be of any help. They accuse me of overreacting and saying that I’m completely healthy despite being physically disabled, and that I will be financially punished for seeking care. (Unrelated, but they are also full-throated fascists who believe that the Holocaust was justified, just to make it crystal clear what kind of people I’m dealing with here.)

    It seems that my conditions are downplayed because of my youth, and to make matters worse, I had already been diagnosed with small-fiber peripheral neuropathy for completely DIFFERENT chronic pain years ago that couldn’t be explained, so they could write it off as that despite my hands demonstrably being ice cold when they weren’t before.

    So if I’m going to do something like this, I need to do it right. I’m open to suggestions if anyone has any.